Measuring what matters to healthcare professionals, patients and service providers
Programme stream(s): Cancer control / living with and beyond and cancer outcomes
Programme session type(s): Specialist session
Speaker: Angus McNair, NIHR, UK
Speaker: David Cella, CORE Core Outcomes Research Centre, Chicago, USA
Speaker: Derek Kyte, University of Birmingham, UK
Date and time: Tue 06-Nov-2018, 14:00-16:00
Although most now acknowledge and recognise the importance of including assessment of patient reported outcomes (PROs) or Quality of Life measures into clinical treatment trials, many problems remain. Firstly choice of measure is frequently inappropriate and often statistical analysis and interpretation somewhat naïve. Secondly PRO data that should assist shared decision-making about treatment options and/or be used to populate decision aids is not always available or understood sufficiently by either HCPs or patients. PROs are rarely seen as primary trial endpoints even when appropriate. Finally adoption of validated PRO measures outwith the trial setting should form part of the electronic record.